- cross-posted to:
- hackernews@derp.foo
- cross-posted to:
- hackernews@derp.foo
Drugmakers Are Set to Pay 23andMe Millions to Access Consumer DNA::GSK will pay the DNA testing company $20 million for non-exclusive access to genetic data.
Drugmakers Are Set to Pay 23andMe Millions to Access Consumer DNA::GSK will pay the DNA testing company $20 million for non-exclusive access to genetic data.
The problem is that just because you are ok with sharing your data (even if you don’t understand the potential consequences), your close family and any decendants aren’t able to consent or not consent to their shared genetic data being given to these corporations.
How would you feel about your children being unable to get insurance coverage because a close relative used the service and the insurance company decided they were at too high risk for expensive medical problems due to similarity of genes?
To be clear, this is a made-up scenario that would be illegal under current US law.
Companies break laws all the time. The punishment is frequently small compared to profits from the crime.
Vague nihilism doesn’t dispute what I said
The law here is inconsequential. The only protection that is certain is for the data not to exist.
It’s very much not.
Are you sure?
Yes. The issue you pointed to is being investigated after all. And there are potential damages if they are found to be violating the law.
Did it potentially being illegal actually stop it from happening?
It does stop other things from happening. So how do you square that circle? Or hopefully you can see that your simplistic thinking isn’t terribly useful?
Source please!