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Joined 1 year ago
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Cake day: October 1st, 2023

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  • Cures for otherwise blinding conditions do exist (e.g., cataract removal, some gene therapies for retinal diseases) and they’re good. I have a condition that will eventually render me blind and I would seek to be cured if a cure existed for it.

    But pursuing/promoting cures for disabilities, including blindness, is not without problems. See, in the US for example, the politics of the National Federation of the Blind vs. the Foundation for Fighting Blindness. Cures also raise class issues and threaten to further marginalize people who won’t or can’t be cured, for whatever reason. In particular, imagining a world in which ‘everyone’ is cured is dangerous and even inherently harmful ideology.

    Also, while I have some reservations about the rhetoric and what I think it likely really means, there are blind people out there who will tell you they don’t want to be cured because it’s part of who they are and they’re getting along just fine. Such people do exist. A similar sentiment exists for some within the deaf community as well.


  • Gene therapies for other genetic conditions often do, but then those aren’t neurodevelopmental.

    I’m kinda fascinated by the question of how something like this would affect me. Like the way a psychedelic experience can teach us lessons we still retain (and want to hold onto), like the way formative experiences leave deep traces in us even when when we grow and change, what features of autism would always ‘stay with me’ on some level? If things changed perceptually for me, what old habits of mind would I retain? What would I miss most? What would I not miss?

    In a lot of ways I think temporary windows into different neurotypes would be much more interesting than purported ‘cures’. People don’t usually want to undo their own personalities, including mental dimensions like neurotypes. But who wouldn’t want to play with that a bit, if they knew it were safe?


  • This kind of thing is really interesting for what it might teach us about autism and the human brain more generally, but when it comes to the practical applications I just don’t see a future where it doesn’t present a ton of problems. Even when you make it ‘voluntary’, eugenics is dangerous and closely allied with exterminationist sentiment, thinking, and practice.

    And it seriously risks, at a minimum, deeply undermining struggles to accommodate rather than erase disabilities. Admittedly this is a step beyond the technical capability, but if a society develops an expectation that some major human variation (be that autism, deafness, blindness, or whatever) be cured rather than accommodated wherever it is a ‘problem’, where does that leave people (or parents) who refuse the cure for themselves (or for their children)? I can easily imagine arguments like ‘if you don’t want problems, just administer the cure! you’re being selfish’, ‘this creates an unnecessary burden’, etc.




  • This is similar to Marx’s critique of freedom under liberalism as merely ‘formal’. The problem is the gap between that can exist between a nominal right and practical exercise of that right.

    This kind of problem is common with rights-based approaches to justice and can be witnessed with human rights broadly. Its identification isn’t unique to Marxism, either; liberals sometimes get at it with the phrase ‘equality of opportunity’, for example. To say that opportunities can be unequal (and that this is a problem) is to admit that justice requires the guarantee of more than just formal rights. I’d say this a problem that has shaped liberal ‘privilege’ discourse as well: privilege is just such a kind of gap that allows (or constitutes?) the persistence of injustice in the face of nominal/formal/legal equality.

    Like in other cases, I’d say that the four fundamental software freedoms get at something genuinely important, and that it’s better to have them, even just formally, than not. But like with other freedoms and rights, it’s easy to conceive of them too ‘thinly’. They need to be fleshed out with a more general awareness of power relations and of the practicality of their own exercise.

    To some extent, that awareness of software freedom as situated within power relations is actually already present in free software discourses, which talk often of things like subordination, domination, subjugation, etc., from the start. Unsurprisingly, that dimension is largely absent from the ‘open-source’ perspective.


  • Reaction videos are the lowest form of content imo. Far lazier and far less interesting than speedrunning, coding streams, reading/discussion streams, etc. (Not that I find Twitch streams generally compelling, either.)

    And payments to streamers aren’t donations in the sense of charity and don’t claim to be. They’re tips paid to entertainers, like money tossed into the hat of a street musician. It’s a different model than wage work but it’s not like a scam or a trick or something.

    Using those tips to employ the wage labor of others (e.g., video editors) is exploitation, though.